Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington's

Therese Marie Crutcher-Marin
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Watching Their Dance: Three Sisters, a Genetic Disease and Marrying into a Family At Risk for Huntington's

Therese Marie Crutcher-Marin
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Overview

312 PAGESENGLISH

Promotional Details
  • Published date: Mar 22, 2017
  • Language: English
  • No. of Pages: 312
  • Publisher: NorCal Publishing Company
  • ISBN: 9780998442204
  • Dimensions: 5.25" W x 0.65" L x 8.0" H
No one could have written Watching Their Dance but Therese Crutcher-Marin. Therese multitasked for years: working fulltime, raising two children, coping with her husband''s at-risk status for Huntington''s disease, and eventually managing the care of two sisters-in-law and observing the decline of the third. Therese earned her college degree in business administration with a concentration in marketing and went on to work in management in Sacramento. Later, knowing that at least some in her husband''s family would develop Huntington''s, she chose to pursue a master''s of science in healthcare administration, and later worked as head of support services of the Auburn Faith Community Hospital hospice program. Her goal: to empower people with the knowledge and resources to maintain dignity, quality, and control in their lives until their final breath. Therese managed more than two hundred hospital volunteers, which strengthened her community-outreach program, and established two revenue-producing entities for the Auburn Faith hospice program, the hospice thrift store and Hospice Healing Garden, both of which continue to fund the hospice program. She has been a member of numerous boards and committees, including the Placer County Commission on Aging, the Older Adult Advisory Committee, and the Sacramento Hospice Consortium. During her healthcare career, Therese developed and implemented yearly marketing plans that included newspaper articles and ads, quarterly newsletters, brochures, radio and TV appearances, and talks to clubs, service organizations, and professional associations. She taught a class called Born Dying at Sierra College, in Rocklin, California. She published The Placer County Senior Resource Guide, now in its twentieth year of publication. Being a part of the Sacramento Suburban Writers Club fueled her desire to improve her writing, as did the critique group she participated in for two years. This is her first book.

"Watching Their Dance is a heart-wrenching tale with HOPE as the key ingredient for survival." Jake Dowell, professional hockey player and Huntington's disease advocate. "Flip of a Coin" was a documentary produced by ESPN in 2013 about Jake and his journey through genetic testing.

"Tears, laughter, blessings, and hope....an amazing story that will touch, and help, I pray, everyone who reads it." Trey Gray, drummer for Reba McEntire and Brooks & Dunn and HD advocate.

"Therese Crutcher-Marin's story of a life at risk adds a new voice to Huntington's disease literature." The team at HOPES, Huntington's Outreach Project for Education, at Stanford University.

"Fatal and untreatable, Huntington's disease has been called the mother of all diseases, and those affected suffer from a devastating set of symptoms similar to those of ALS, Parkinson's, dememtia, and Alzheimers's combined. Watching Their Dance offers a compelling glimpse into the lives of an HD family, navigating a world of loss and fear with courage and clarity." Kate Miner, actress, musician and HD advocate.

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